Acknowledgment for PROMIS® and Assessment Center

The use of Assessment Center℠ and the Assessment Center℠ API is subject to copyright terms and conditions which can be found at www.assessmentcenter.net. Assessment Center is ©2014 David Cella, Richard Gershon, Michael Bass and Nan Rothrock. The Assessment Center API is ©2014 Michael Bass.

PROMIS TERMS AND CONDITIONS
You understand and agree that the PROMIS Health Organization and PROMIS Cooperative Group provides access to PROMIS instruments (e.g., item banks, short forms, profile measures) subject to the PROMIS Terms and Conditions (PTAC). The PROMIS Health Organization/Cooperative Group reserves the right to update the PTAC at any time. Changes in the PTAC will apply to new users, new instruments and to new projects created by existing users after these changes are posted. The most current version of the PTAC can be reviewed by clicking on the Terms of Use hypertext link located in Assessment Center.
PERSONAL AND NON-COMMERCIAL USE LIMITATION.
PROMIS instruments measuring self-reported fatigue, pain, physical function, social function, emotional distress, sleep disturbance, sleep-related impairment, and global health are available for adult and pediatric samples. Additionally, an item bank and short form for measuring impact of asthma in pediatric samples is available. These tools were developed in the English language using extensive qualitative methods to ensure conceptual and semantic clarity. They have been tested for reliability and comparability to more established measures of these same content areas. Adult testing in over 20,000 individuals from the United States (U.S.) general population has resulted in individual item calibrations that enable one to generate a T-score (mean=50; standard deviation = 10) based on a sample of people in the general U.S. population. Included in this first wave of PROMIS item testing were several clinical samples. Child and youth testing in over 4,000 individuals from the United States (U.S.) general pediatric clinical population has resulted in individual item calibrations that enable one to generate a T-score (mean=50; standard deviation = 10) based on a sample of children in the U.S. general pediatric clinical population. The item calibrations and test statistics provided are all based upon cross-sectional data collection. PROMIS item banks have not yet been tested longitudinally in clinical or non-clinical samples; therefore information on the responsiveness of PROMIS item banks is unavailable. Their use in clinical research is encouraged, with the understanding that data collected from that use will contribute to knowledge about the validity of PROMIS measures. Therefore, until validity data are more mature, USERS OF PROMIS TOOLS ARE STRONGLY ENCOURAGED TO SUBMIT A BRIEF REPORT INCLUDING SAMPLE DEMOGRAPHIC INFORMATION, CLINICAL DATA SUFFICIENT TO DEFINE THE SAMPLE WITHOUT INDICATING TREATMENT RESPONSE DATA, AND PROMIS SCORE DISTRIBUTIONS (E.G., BASELINE MEAN AND STANDARD DEVIATIONS OR CHANGE SCORES BLINDED TO TREATMENT INFORMATION). This brief report should be submitted to help@assessmentcenter.net for internal review. None of this submitted information will be published without the written consent and participation of the submitter. In addition to the brief report, clinical researchers are encouraged to submit de-identified data for collaborative analysis and reporting. Data ownership would remain with the submitter. Clinical researchers are strongly encouraged to collaborate with PROMIS investigators when applying these items and banks to their research.

ANY PUBLICATION OR PRESENTATION OF RESULTS OBTAINED FROM STUDIES CONDUCTED USING THESE INSTRUMENTS SHOULD INCLUDE A STATEMENT THAT PROMIS VERSION X INSTRUMENTS WERE USED, AND REFERENCE THE PROMIS SITE (WWW.NIHPROMIS.ORG) FOR FURTHER INFORMATION.

PERMISSION TO USE PROMIS INSTRUMENTS DOES NOT GRANT PERMISSION TO MODIFY THE WORDING OR LAYOUT OF ITEMS, TO DISTRIBUTE TO OTHERS FOR A FEE, OR TO TRANSLATE ITEMS INTO ANY OTHER LANGUAGE. SUCH PERMISSION TO MODIFY, DISTRIBUTE, OR TRANSLATE MUST BE REQUESTED FROM THE PROMIS HEALTH ORGANIZATION OR THE OWNER OF THE COPYRIGHTED MATERIALS FROM WHICH PROMIS HAS BEEN DERIVED.
COPYRIGHT NOTICE AND CLAIMS OF COPYRIGHT INFRINGEMENT.
Information and materials contained herein are ©2010 PROMIS Health Organization or other individuals/entities that have contributed information and materials to Assessment Center, and are being used with the permission of the copyright holders.
The table set forth below identifies individuals and entities who have contributed items in support of building PROMIS item banks and the copyrighted information and materials employed by such persons. As a user of PROMIS you are entirely responsible for respecting the proprietary rights of such persons, and for complying strictly with the requirements set forth herein. If you have questions about these requirements and your legal obligations, you may wish to consult an attorney.
Thomas M. Achenbach, PhD
Child Behavior Checklist for Youth
Torbjörn Åkerstedt
Karolinska Sleep Diary
Stanley E. Althof
Center for Marital and Sexual Health Sexual Functioning Questionnaire
Julie Barroso, PhD
HIV-Related Fatigue Scale
Dorcas Beaton
Disabilities of the Arm, Shoulder and Hand (DASH)
Basia Belza
Multidimensional Assessment of Fatigue
Jill Binkley, PT
Lower Extremity Functional Scale
Thomas Borkovec
Penn State Worry Questionnaire
Bengt Brorsson
Swedish Health Related Quality of Life Survey
Richard Brown, PhD
Parkinson Fatigue Scale
Elly Budiman-Mak, MD
Foot Function Scale
Arnold Buss
Buss-Durkee Hostility Inventory
Daniel J. Buysse
Pittsburgh Sleep Quality Index
Andrei Calin, MD
Bath Ankylosing Spondylitis Function Index (BASFI)
David Cella, PhD
Functional Assessment of Chronic Illness Therapy (FACIT)
Center on Outcomes, Research, and Education Item Banks
Larry Chambers, PhD
McMaster Health Index Questionnaire
Trudie Chadler
14-Item fatigue scale
Kimberly A. Cote
Brock Sleep and Insomnia Questionnaire
Laura Creti
Sexual History Form
Peter Dent, MD
Juvenile Arthritis Self-Report Index (JASI)
George Domino
Assessment of Sleep
Sleep Questionnaire
Maxime Dougados, MD
Dougados Functional Index (DFI)
Alan B. Douglass
Sleep Disorders Questionnaire
M Tuncay Duruoz, MD
Duruoz Hand Index
Colin A. Espie
Beliefs and Attitudes about Sleep Scale
Dysfunctional Beliefs and Attitudes about Sleep Scale - 10
Glasgow Content of Thoughts Inventory
Insomnia Impact Scale
Sleep Disturbance Questionnaire
Catherine S. Fichten
Sleep Diary
Sleep Questionnaire
Robert Ficke
Performance Outcomes Measures Project
J.D. Fisk
Fatigue Impact Scale
James F Fries, MD
Health Assessment Questionnaire (HAQ)
Johanna CJM de Haes, PhD
Rotterdam Symptom Checklist
Stephen Haley, PhD
Late Life Function and Disability Instrument: Function Component
Danete Hann, PhD and Paul Jacobsen, PhD
Fatigue Symptom Inventory
Philip S Helliwell, MD, PhD
Revised Leeds Disability Questionnaire
Ian Hindmarch
Quality of Life of Insomniacs
Leeds Sleep Evaluation Questionnaire (LESQ)
Mark Hlatky, MD
Duke Activity Status Index (DASI)
Timothy J. Hoelscher
Insomnia Impact Scale
E. Scott Huebner, PhD
Multidimensional Students' Life Satisfaction Scale (MSLSS)
Jeffrey G. Johnson, PhD
Patient Health Questionnaire for Adolescents (PHQ-A)
Lauren Krupp
Fatigue Severity Scale
Sleep Symptom Questionnaire
Jin-Shei Lai, PhD
Pediatric Fatigue Item Bank
Kathryn A. Lee
Numerical Rating Scale for Fatigue
Debra Lerner, PhD
Work Limitations Questionnaire
Kenneth Lichstein
Sleep Questionnaire
Daniel Lovell, MD
Juvenile Arthritis Functional Assessment Scale
Juvenile Arthritis Functional Assessment Report for Children (JAFAR-C)
Ayala Malach-Pines
Burnout Measure
Ralph Marino, MD
Capabilities of Upper Extremity (CUE)
Robert Meenan, MD
Arthritis Impact Measurement Scales 2 (AIMS2)
Tito Mendoza, Charles Cleeland
MD Anderson Symptom Inventory
Charles M. Morin
Insomnia Interview Schedule
Sleep Diary
Douglas E. Moul
Pittsburgh Insomnia Rating Scale
Nikolaus Netzer
Berlin Questionnaire
Geraldine Padilla
Quality of Life Scale - Cancer
Tonya M. Palermo, PhD
Child Activity Limitations Interview (CALI)
George Parkerson, MD
Duke Health Profile
Donald Patrick, PhD
WHOQOL-100 US Version
Arnold L. Potosky
Prostate Cancer Outcomes Study
Jack D. Edinger, Professional Resource Exchange
Edinger's Sleep History Questionnaire
Quentin R. Regestein
Hyperarousal Scale
Robin Richards, MD
American Shoulder and Elbow Surgeons Shoulder Form (ASES)
Tracey Riseborough
Hospital Anxiety and Depression Scale (HADS)
Kathryn Roach, PhD
Shoulder Pain and Disability Index
Martin Roland, MA, MRCP
Roland-Morris Low Back Pain and Disability Questionnaire
Raymond Rosen and Jules Mitchell
Brief Index of Sexual Functioning for Women
Female Sexual Function Index
Thomas Roth
Global Sleep Assessment Questionnaire
Debra Sciabarrasi
Barthel Index
Cathy Sherbourne, Robert Brook, Brent Bradley
Rand-36 Index of Vitality
Judith Siegel, PhD
Multidimensional Anger Inventory
Ann Skinner
Sickness Impact Profile (SIP)
John Spertus, MD, MPH
Seattle Angina Questionnaire
Charles D. Spielberger, PhD
State-Trait Anger Expression Inventory (STAXI)
Barbara Starfield, MD, MPH
Child Health and Illness Profile - Adolescent Edition (CHIP-AE)
Kevin Stein
Multidimensional Fatigue Symptom Inventory
K.L. Syrjala
Sexual Function Questionnaire
Peter Tugwell, MD
McMaster Toronto Arthritis
James W. Varni, PhD
Peds™ Arthritis Module Version 3.0 Child Report (ages 8-12)
Peds™ Asthma Module Version 3.0 Child Report (ages 8-12)
Peds™ Cerebral Palsy Module Version 3.0 Child Report (ages 8-12)
Peds™ Multidimensional Fatigue Scale Standard Version Child Report (ages 8-12)
Peds™ Pediatric Quality of Life Inventory Version 4.0 Child Report (ages 8-12)
John Ware, PhD
PIQ-6
SF-36 v2
Terri E. Weaver
Functional Outcomes of Sleep Questionnaire
Wilse B. Webb
Post-Sleep Inventory
Nadine Weisscher
AMC Linear Disability Score (ALDS)
Nick Wetton
Crown-Crisp Experiential Index
Horng-Shiuann Wu, PhD
Cancer-Related Fatigue Instrument